Living With LC-FAOD

Woman who typifies a caregiver with a child who typifies a person with LC-FAOD

Rare Care and Everyday Life

Monitoring and Supervision

The disease demands families and caregivers to immediately establish and closely follow a specific diet and monitor physical activity.

  • Care of individuals with LC-FAOD may require an around-the-clock commitment to check for signs and symptoms of deterioration and/or fatigue.
  • The management of caloric intake, avoidance of fasting (including overnight), and potential monitoring/maintenance of enteral feeding tubes may result in restrictions on time and freedom.

Health-related Quality of Life Issues

A person’s quality of life may be substantially diminished as a result of LC-FAOD.

  • Physical, mental, emotional, and social functioning are negatively impacted.
  • Factors that may lead to anxiety and depression include:
    • Continual avoidance of triggers (exercise, exposure to viral illness, cold or hot weather)
    • Risk of symptom recurrence
    • Uncertainty or fear about the long-term impact of LC-FAOD

If you are experiencing any of these issues, seek the help and guidance of a trained medical professional.

Another woman who typifies a caregiver with a child who typifies a person with LC-FAOD

If you are experiencing any of these issues, seek the help and guidance of a trained medical professional.

Learn how to take care of yourself while caring for someone with LC-FAOD

Living Well While Caring For Someone With LC-FAOD

Taking care of yourself is as important as taking care of someone living with LC-FAOD

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