FAOD management

There are currently no approved drugs or treatments specifically for FAOD. Some people are able to manage their health by avoiding fasting, following a low fat diet, using a medium-chain triglyceride (MCT) oil* and/or taking prescribed carnitine.1,2

It’s important to speak with a doctor and/or dietitian to devise a personalized FAOD medical strategy.

*Patients with LC-FAOD only.

Dietary supplements

  • MCT oil. MCT oils are commonly derived from coconut oil, palm oil, and dairy fat. MCT oils contain fatty acids that can help restore energy.3
  • Carnitine. This is a natural substance produced by the body. It’s also found in foods such as dairy products and meat. The major role of carnitine is to transport fats into the cell, where they are converted into energy. It also helps to eliminate toxic by-products of fat metabolism.4

Supportive dietary care

Tailoring your diet. Talk with your doctor about your diet.
Make sure you know:

  • Foods to avoid (if any)
  • Foods which can be consumed in limited amounts
  • Foods which can be consumed as much as desired

Avoiding fasting. Doctors may recommend to avoid fasting. An adult patient is recommended not to fast longer than 12 hours, which is a typical overnight fast. Young children may not be allowed to fast for even shorter periods, because their bodies will more quickly switch to using body fat for energy.4

Other forms of care

  • Wear a medical alert bracelet. A medical alert bracelet is a great way to inform others that you have a medical condition that may require immediate attention in case of an emergency.
  • Keep an emergency protocol letter. In case you need to visit the ER, an emergency protocol letter provides the health care team with all your relevant medical and contact information.
    See a sample letter here.

Talk to your doctor if you think a medical alert bracelet and emergency protocol letter might be good for you.

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References: 1. LC-FAOD. Ultragenyx Pharmaceutical Inc. http://www.ultragenyx.com/patients/faod/. Accessed August 17, 2016. 2. Roe CR, Sweetman L, Roe DS, David F, Bruengraber H. Treatment of cardiomyopathy and rhabdomyolysis in long-chain fat oxidation disorders using an anaplerotic odd-chain triglyceride. J Clin Invest. 2002;110(2):259–269. doi:10.1172/JCI200215311. 3. St-Onge MP, Bosarge A, Goree LLT, et al. Medium chain triglyceride oil consumption as part of a weight loss diet does not lead to an adverse metabolic profile when compared to olive oil. J Am Coll Nutr. 2008;27(5):547–552. 4. Diagnosis & treatment. FOD Family Support Group. http://fodsupport.org/diagnosis.htm. Accessed August 17, 2016.